Saturday 1 March 2014

"Life is short" : A bridge between mesothelioma and photography

Since Steve was diagnosed with mesothelioma in 2009, my priority has been to support him in whatever way I can, and in the process, raise awareness of the disease and the risks associated with asbestos.   In parallel with the meso journey, photography has become a creative lifeline; something else to focus on when times are tough; something for me to do alone when Steve has needed to rest; something to enjoy together and take us on other types of journeys when life has been good; something to share with others.  

At the outset, these two big things were very separate   However, the line between the meso journey and photography often gets blurred these days.  People we have met in the mesothelioma community enjoy looking at the photographs posted in the blog and on Facebook.  Many of the friends we have made through photography now number amongst our strongest supporters as Steve battles through another treatment regime.

Milestones, such as the start of a new year or an anniversary of something special, often trigger a bit of navel-gazing.  So perhaps it's not surprising that Steve's birthday tomorrow - his fifth since being told he was terminally ill - has triggered such thoughts.  

However, on this occasion the rest of the post I'm going to share with you is not mine.  It's a piece originally written in 2010 by David duChemin, world and humanitarian photographer, nomad and author, which was re-posted on his website today.  

Since being dealt the body blow of mesothelioma diagnosis in 2009, we have come to understand and appreciate the sentiments expressed below.  We have certainly done our best to enjoy our time together as much as possible over the intervening years.  It also seemed a fitting way to build a bridge between two strands which have run through our lives since then - a piece written by a photographer which was inspired by the experience of knowing others living with cancer


David duChemin writes: 

Life is short. Nov.16, 2010

I had breakfast with a close friend of mine yesterday and it’s that meeting that is making me write this, because I can’t keep it in this morning. His wife, one of my favourite people on the planet, is fighting for her life against inoperable brain cancer. She’s fighting, but she’s not well, and the doctors are talking in terms of quality of life, not healing, not remission. My heart is breaking for her. My heart is breaking for him. A young couple that, like all of us, thinks they have forever together, have all the time in the world to chase their dreams. But we don’t. None of us do. It’s an illusion.


Life is short. We seem to think that we’ll live forever. We spend time and money as though we’ll always be here. We buy shiny things as though they matter and are worth the debt and stress of attachment. We put off the so-called “trip of a lifetime” for another year, because we all assume we have another year. We don’t tell the ones we love how much we love them often enough because we assume there’s always tomorrow. And we fear. Oh, do we fear. We stick it out in miserable jobs and situations because we’re afraid of the risk of stepping out. We don’t reach high enough or far enough because we’re worried we’ll fail, forgetting – or never realizing – that it’s better to fail spectacularly while reaching for the stars than it is to succeed at something we never really wanted in the first place.


A woman emailed earlier this year. Her husband, the love of her life, was a fan of mine and he’d just come through a tough fight with Leukemia. She asked if I’d take some time with him, go shooting with him if he came to Vancouver, sort of as a celebration of his recovery. I said yes, of course, how could I not. But I was busy, about to travel, and could we do it in a couple months when summer rolled around and I had time to host him. Of course. Let’s talk soon. I got back two months later and sent an email saying, let’s make it happen! And 5 minutes later got a reply telling me the leukemia had returned with speed and fury and within days he’d gone. Even now, I’m writing this with tears, though anyone that knows me knows it doesn’t take much.


We think we’ve got forever and that these concerns that weigh us down are so pressing. We worry about the trivial to the neglect of the most precious thing we have: moments we’ll never see again. We talk of killing time, passing time, and getting through the week, forgetting we’re wishing away the moments that comprise our lives. We say time is money when in fact the time we have is ALL we have. Money can be borrowed, time can’t. We fear taking risks, unaware that the biggest risk we run in playing it safe is in fact living as long as we hope and never doing the things we dreamed of. And then it’s too late. We watched our favourite TV shows, we fought a losing battle with our weight, we picked up the guitar once in a while and never quite finished the french language courses we wanted to do. We managed to get a large flatscreen and new cars once in a while, but the list of things we’d have done if we could really, truly could have done anything, kept growing. And we never did them.


I don’t know how to wrap this up. There’s no resolution. I was in Sarajevo last week thinking about all this; I’d be walking the old city thinking how amazing it was, looking into the hills that surround it. And then it occurred to me, just over 15 years ago the citizen of Sarajevo that stood in this spot was likely to be hit by mortar shells or sniper fire. We’re all terminal folks. We’re all in the sniper scope. We’ve got less time that we think. For every ten people that email me and say, “I wish I could do what you’re doing. I wish I could follow my dreams, I wish, I wish…,” I wonder if even one moves forward. I hope so.


Whatever your dream is, find a way to make it happen. Your kids can come with you. Your job can wait. You can find someone to feed the cat. I know, I know, there are so many reasons we can’t and some of those reasons are valid. Life is not only short, it is also sometimes profoundly hard. But I think sometimes our reasons are in fact only excuses. If that’s the case, take stock. I talk a lot about living the dream, and I’m an idealist, I know it. But it’s not self-help, positive-thinking, wish-upon-a-star. It’s the realization that life is short and no one is going to live my life on my behalf. And one day soon – because it’ll seem that way, I know it – my candle will burn out; I want it to burn hot and bright while it’s still lit. I want it to light fires and set others ablaze.


Life is short. Live it now. And live it with all your strength and passion now. Don’t keep it in reserve against a day you might not have. While the ember is still lit, fan it to flame. Be bold about it, even if your circumstances mean all you have is to love boldly and laugh boldly. Because now is all we have, and these dreams won’t chase themselves.



I would credit the photographer, if I knew whose image this is! 



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