Sunday 27 April 2014

beginning to bounce back

It's now two weeks since Steve finished the Vansel drug trial. During the first week off the drugs, it felt rather like two steps forward, one step back as some side effects disappeared, others carried on and some became worse.  

The good news is that it's been an improving picture this week.  Steve's appetite has returned and he is eating well most of the time.  He still feels tired, but the dreadful lethargy has faded away and he's had some energy to do a few things around the house.  

The flurry of spots on his face has died down. However, the mild nose bleeds continue on and off, as has the cough, but not quite so much...I think...

The most noticeable difference is Steve's demeanour - he is smiling and laughing much more and the body language is much more positive.  The bounce back has begun, I believe...let's hope it continues!

We are thinking about a trip to Bristol next week to visit Steve's mum.  The plant we bought as a Mothers day present (which we couldn't take to her as he was unable to venture far from the lavatory at the time) still has some flowers on it, so I'm hoping she will see it before it finishes flowering completely.

It's our wedding anniversary next Thursday - the fifth since Steve was diagnosed with mesothelioma, so it feels like another important target is within our grasp. 

We've progressed the garden makeover project to the point where we are now able to invite estimates to carry out the work.  Still a long way to go, but when it's finished, it will be wonderful to be able to sit out and enjoy the garden again after neglecting it for so long.  

Love as always to the meso warriors, especially to family and friends of Michael who died a few days ago after a valiant battle with the disease, at the tender young age of 29 years...Such a waste of a young life, made all the more poignant because it could have been avoided had asbestos been banned globally when the dangers of inhaling or ingesting the fibres became known.  

On a more positive note, the response to the Saatchi Bill consultation has been excellent, with over 18,000 people giving their support, including many in the mesothelioma community.  If you want to know what happens next, follow THIS LINK!

By the time I post again, it will probably be May.  Happy Mayday to everyone, especially those brave souls in Oxford who get up at the crack of dawn to hear the choir singing on the top of Magdalen College Tower, then head off to watch the Morris groups and others strut their stuff. And the pubs are open too....Here's David Clover's video of last year's May Morning celebrations to give you a flavour!  

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