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On 16 June 2009, Steve was diagnosed with mesothelioma - an aggressive cancer caused by exposure to asbestos, for which there is no known cure at present. This blog is my record our feelings, our actions and the outcome of our attempts to deal with this disease. If nothing else, it will be a way to let family and friends know what's happening. I hope that sharing this experience will help others in this position and raise awareness of mesothelioma.
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UK Clinical Trials and related matters
- ADAMS Trial (ADI-PEG 20 TM)
- ADAMS trial - more information
- All Trials Campaign website
- COMMAND Defactnib (VS 6063)
- Early Access to Medicines Scheme (EAMS)
- HSV1716 - the cold sore virus trial
- HSV1716 for those with a pleural drain fitted
- MESO-2 pemetrexed/cisplatin plus STA 9090/Ganetespib
- MK-3475 Pembrolizumab immunotherapy trial
- NGR-hTNF podcast from Curemeso
- NGR-hTNF trial
- Tremelimumab Phase 2 trail
- UK Clinical Trials Gateway
- USA -based Clinical trials database, includes some non-USA trials
- VanSel1
Posts
Followers
We are not alone : Links to other meso people's blogs
- Amanda and Ray's mesothelioma journal
- Claire and Paul's mesothelioma journey
- Dave Staley Blog
- Debbie Brewer
- Dr Andrew Lawson
- Heather Von St James - decade of survivorship
- Jan's Meso blog
- Julie Bastian
- Linda Lakin Mesothelioma - my journey
- Lorraine's Journey with Mesothelioma
- Lou William's blog: Asbestos - Living with mesothelioma in Australia
- Mavis Nye
- Steve's mesothelioma journey in Australia
- Tess Gully's Targets
- Veronica White (Ronny)
Raising awareness
Show your support
Watch
- Scroll down to DOCUMENTARY Winner - Me & Theo - Claire Wilkins
- Running up that hill - a tribute to Bernie Banton
- Mesothelioma: The human face of an asbestos epidemic
- Louie Palu - Dust to Dust: The legacy of asbestos
- Last hope China - Peder's journey to China in search of a cure for mesothelioma
- Breathe: an exhibition of photographs by Chris Ireland dedicated to widows united by loss of a loved one to mesothelioma and to their men who have gone
- Asbestos in Schools video for Action Mesothelioma Day 2011
Fundraising
Chemoembolization: the petition to 10 Downing Street
Find out more about Mesothelioma
- Asbestos Disease Awareness Organization
- Asbestos in Schools
- CureMeso
- http://www.cancerbackup.org.uk/cancertype/mesothelioma
- http://www.cancerbackup.org.uk/Treatments/Biologicaltherapies/Cancergrowthinhibitors/Bortezomib
- http://www.mesothelioma.uk.com
- Mesothelioma & Asbestos Awareness Center
- Mesothelioma Info: Mesothelioma stories
Blog Archive
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2014
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March
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- VanSel1 Cycle 2 Day 15: Better out than in....
- VanSel1 Trial Cycle 2 Days 10-14
- Early Access to Medicines Scheme and Medical Innov...
- VanSel Cycle 2 Days 8-9: a small milestone
- VanSel clinical trial - Cycle 2 Week 1
- The Early Access to Medicines Scheme (EAMS)
- VanSel 1 drug trial - Cycle 2 Day 1 : Good to go!
- VanSel Early Phase drug trial - Day 42 and the end...
- Intervals
- A roller coaster of a week in a small world
- Please support the Saatchi - Medical Innovation - ...
- a birthday, a blip and another bereavement....
- "Life is short" : A bridge between mesothelioma a...
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March
(13)
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