tag:blogger.com,1999:blog-8471327104506921911.post966369640899137691..comments2023-08-24T17:45:11.506+01:00Comments on Doing something positive, again: Two years since diagnosis and the doctor said....Linda Wridehttp://www.blogger.com/profile/00489916606266253830noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8471327104506921911.post-39648960757823384162011-06-20T11:22:02.478+01:002011-06-20T11:22:02.478+01:00Hi Anita
We have been following your blog, so are...Hi Anita<br /><br />We have been following your blog, so are aware of what's happened to you. It must have come as a horrible surprise........<br /><br />The team here in Oxford don't do scans routinely - not wanting to expose people to radiation unless there is an indication that the meso is growing aggressively. No such indication on the X-Rays. Steve is still feeling great - no pain, breathing not affected. While he feels that way, he wants to carry on as usual. <br /><br />He is very much listening into his own body. If he felt any indication that the meso was on the move, we would get in touch with the team at once to arrange a scan. <br /><br />Having read about your experience, it may be that we are sticking our heads in the sand. But as you know, everyone handles things in their own way, so we are carrying on as usual, making the most of life and determined to enjoy the summer.<br /><br />Thinking off you,<br /><br />love Linda and Steve xLinda Wridehttps://www.blogger.com/profile/00489916606266253830noreply@blogger.comtag:blogger.com,1999:blog-8471327104506921911.post-23586938361688202011-06-19T14:05:55.542+01:002011-06-19T14:05:55.542+01:00That really is excellent news Linda and may it con...That really is excellent news Linda and may it continue like that for a very very long time. <br /><br />I was just wondering, when did Steve last have a PET Scan? If it has been a while it might be worthwhile having one of those just to make sure. Otherwise, please ignore everything I am about to say from this point.<br /><br />I just found out that the PET Scan I had in October showed extensive coverage of my right chest while all my X-rays up until then showed no progression. I thought I was still in complete remission. I don't mean to cause unnecessary worry when there probably is nothing to worry about and I certainly don't want to rain on your parade when you are celebrating a wonderful result, but just for absolute peace of mind it might be worth having a scan done. I now know that either my oncologist is totally incompetent or that X-rays don't show up minor tumours. The extensive coverage I had would have been all tiny tumours. But in any case, in the off chance that there is something there, it is important to remember that it is still moving very slowly and what is there would be very small as well.<br /><br />I hope that saying this hasn't offended or upset you, as you must know that wasn't my intention. <br /><br />All the best to you and Steve,<br /><br />Anita xxAnitahttps://www.blogger.com/profile/00691919042633648229noreply@blogger.comtag:blogger.com,1999:blog-8471327104506921911.post-31163525618757948712011-06-16T23:05:11.673+01:002011-06-16T23:05:11.673+01:00thanks Amanda - I'm sure we will!
Lindathanks Amanda - I'm sure we will!<br /><br />LindaLinda Wridehttps://www.blogger.com/profile/00489916606266253830noreply@blogger.comtag:blogger.com,1999:blog-8471327104506921911.post-85589333446371582612011-06-16T22:38:45.524+01:002011-06-16T22:38:45.524+01:00Excellent news - enjoy the summer.Excellent news - enjoy the summer.Amandahttp://ajandray.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-8471327104506921911.post-84635544128668995392011-06-16T17:33:17.948+01:002011-06-16T17:33:17.948+01:00It's surprising how far you can get Ronny - ju...It's surprising how far you can get Ronny - just taking one step at a time! Keep walking :-)Linda Wridehttps://www.blogger.com/profile/00489916606266253830noreply@blogger.comtag:blogger.com,1999:blog-8471327104506921911.post-74081029745647482082011-06-16T14:10:53.309+01:002011-06-16T14:10:53.309+01:00Fantastic news. It is always one step at a time fo...Fantastic news. It is always one step at a time for us meso patients. xxVeronica Whitehttp://ronnywhite.blogspot.com/noreply@blogger.com